"EM" is a rare neurovascular condition that causes painful burning, warmth, and redness to the feet, hands, face, and- less commonly- other parts of the body.
Imagine feeling as if your feet or hands are on fire 24/7.
In addition to living with extreme pain, those with EM lose the ability to do things they love.
Orphan diseases are not only isolating but are also poorly funded.
At the Einstein Mission, we think outside the box to fund uncommon research and treatment for the under-acknowledged diseases of erythromelalgia (EM) and chronic inflammatory response syndrome (CIRS).
Our organization's name was coined due to a commitment to thinking outside of the box much like the great Albert Einstein. In addition, the Einstein Mission is a throw back not only to the initials of our illness but also to Dr. Sparks' dog, Einstein, who was one of her most loyal support "people" during her disease process.
Donations fund research and treatment in the form of both medical treatment & therapy. Current medical research is looking at the connection between EM and chronic inflammatory response syndrome. Current therapeutic research is exploring narrative ways of working within a community support circle with those diagnosed with EM and/or CIRS. In addition to research, you can sponsor direct treatment in the form of medical visits or therapy. You even have the ability to specify how your funds are spent!
It can be hard to hold onto hope in the midst of this brutal disease. We all define healing differently. At the Einstein Mission, we have hope for your healing and lots of it! Here's why...
The community support circle has blessed my life beyond measure. To know there were others like me, who suffered as I did, and to hear how they were turning their lives around, saved mine. There is hope and together we can turn hope into help."
David B.
We aim to be the best possible stewards of the funds entrusted to us. We can only offer scholarship to those that can demonstrate need. Please fully complete our scholarship application along with submission of supporting documents to get on our waitlist for sponsored care.
Request SupportErythromelalgia is a rare neurovascular condition that most commonly affects the feet, but may also occur in the hands, face, or other parts of the body. The term neurovascular means that both nerves and blood vessels are involved.
The Einstein Mission has a board comprised of only people with lived experience of erythromelalgia. They direct how every donated dollar is spent. In addition, you have the option when donating to specify if you want your funding applied to research or treatment.
Those seeking paid treatment should visit Dr Sparks' medical practice website. Those requesting scholarship or free treatment should submit a scholarship application including supporting documents demonstrating need to get on our waitlist for sponsored care.
Current medical research is looking at the connection between EM and chronic inflammatory response syndrome (CIRS). This includes 173 genes found to potentially be differentially expressed in EM and CIRS patients. Current therapeutic research is exploring narrative ways of working within a community support circle with those diagnosed with EM and/or CIRS. Narrative therapy harnesses the power of our EM community's hard-won wisdom.
If donating online, a receipt for tax purposes is automatically generated. If you need additional information when seeking a company match, we are here to help. Shoot us an email. In addition, should you desire to wire a donation, simply reach out and request our "Wire Transfer Information."
If your questions about donations or volunteer work are unanswered after reviewing our website, feel free to shoot us an email. For treatment inquiries, either refer to Dr. Sparks' medical practice site for paid treatment or the above scholarship application for sponsored care. Do remember, we have hope for your healing and beg you to be enormously kind to yourself today.
